How to Keep a Symptom Diary for Multiple
Sclerosis
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Why Keep a Symptom Diary?
Multiple sclerosis (MS) symptoms come and go.
One day you're fine, but the next you may be too tired to get out of bed. Lots
of things can affect the way you feel, from the weather to the medicines you
take. A diary can help you track your symptoms and look for patterns that may
explain why they're happening.
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Low-Tech Is OK
Your diary doesn't have to be fancy. You can
write it by hand in a journal you keep near your bed. Keep a log of how you
feel every day and what you were doing when your symptoms started. You might
write, "Yesterday I went shopping. I barely slept last night. Today, my
symptoms were worse. My left arm felt weaker than my right."
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Go Digital if You Like
Free apps can help you manage your MS on your
smartphone or tablet. Some let you track your symptoms along with your energy
level, mood, medicines, and activity. Others sync the way you feel to the day's
weather forecast and let you share your journal with your doctor.
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Learn the Signs of MS
To keep an accurate log, you need to know what
to look for. Some common MS symptoms you may have:
·
Intense fatigue that starts early in the morning or comes on
suddenly and gets worse
·
Weakness in your legs and feet that makes it hard to walk
·
Numbness or tingling in your arms, legs, or face
·
Muscle stiffness and spasms
·
Double or blurred vision, or fast eye movements
·
Dizziness and balance problems
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What Info Should You Include?
Under the day and date, write down your
symptom and add details like:
·
When it started and ended
·
Whether it was something new or you've had it before
·
How severe it was on a scale of 1 to 5
·
What was happening when it started (for example, a hot day or
you were exercising)
·
How it affected your activity
·
What you did to treat it, and whether that helped
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How to Track MS Flares
When your symptoms strike up again after a
period of calm, it's called a relapse. They can be mild and barely noticeable,
or intense enough to interrupt your life and job. Use your diary to record any
changes. Share this info with your doctor so you get the right treatment.
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Monitor Your Medicines
Drugs that slow your disease or treat relapses
can help you manage your symptoms. Keep a record in your diary of every
medication and supplement you take. Write down the dose, whether it helped your
symptoms, and what side effects you noticed after you took it.
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How the Weather Makes a Difference
Does your vision get blurry or do you feel
more tired when the temperature goes up? Flare-ups that are linked to
heat are usually temporary, but they could affect your plans for the day. When
your symptoms intensify, describe the day's weather in your diary. If heat and
humidity cause problems, stay inside in the air conditioning. If you go
outdoors, bring fans and other cooling gear.
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Pay Attention to Your Activities
Keep track of your fitness sessions and
activities in your journal. Write down how long you exercised, how much effort
you put into it, and how it made you feel. When you overdo things it can make
your symptoms worse, but it's important to stay active. Exercise can fight
fatigue and weakness. Try to balance periods of moving around with rest.
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Keep an Eye on Your Energy
To help manage your fatigue, write down your
energy levels in your diary. Track how well you slept and how tired you were
the next day. Compare your activities to how much fatigue you feel so you can
figure out when you need to take a break.
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Medical Records to Include
Your symptoms tell only part of the story
about your MS. For a more complete picture, put your test results and doctor's
recommendations in your diary. Some apps compile your medical records for you.
Ask your doctor for a copy of:
·
Magnetic resonance imaging (MRI) reports
·
Blood test results
·
Letters from your doctor to a hospital or other specialists
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What to Do When You Notice Patterns
Your diary may reveal some common themes. You
might notice that your symptoms flare up when you exercise outside in the heat.
Or you could discover that you're most tired at midday. Learning these trends
will help you adjust your daily activities to fit the way you feel. It can also
help your doctor fine-tune your treatment.
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Questions to Ask Your Doctor
Take your diary and a list of questions with
you to your doctor's appointment to get the most from your visit. Ask him:
·
What patterns do you see in my symptoms and activities?
·
Am I doing anything that could make me feel worse?
·
What else can I do to control my flare-ups?
·
Do I need to switch to a new treatment or dose?
This tool does not provide medical
advice. See additional information.
·
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